I haven’t posted here in a while. Many of you know that we have had a lot on our mind the past week or so. Aiden has been tentatively diagnosed with a rare bone disorder — to go with the rare kidney disorder. Oh joy! Seriously, can my baby catch a break? If the diagnosis is confirmed, chances are he will need surgery on both legs before he can have his kidney transplant.
To be honest, I wanted to throw my hands in the air and scream at anyone who would listen, God included. But the very same day that we got this “tentative” diagnosis Aiden , once again, taught ME something.
After the long car ride to and from Dallas, he was exhausted and had spent most of the ride there and back crying because his legs hurt after long periods of time in his car seat ( the pain is apparently a side-effect of the bone disorder). He was talking on the phone to my grandmother after we finally made it back home and one of the first things he asked her was, “Is PawPaw doing okay?” Nevermind his pain, nevermind 2 rare diagnoses and surgeries and trials to come…he was concerned about the well-being of those he loves. My heart swelled. Surely God has given me a rare gem of a child. I am blessed.
Later that night, after hooking up to his dialysis machine we said our prayers. “Now I lay me down to sleep…” After the “Amen” at the end, Aiden added “Praise you Jesus.” Again, my heart was full. Full of love for this little blessing that teaches me so much. Instead of dwelling on the difficulties, he opts to Praise You, Jesus. And so….I will too.
I honestly think that my son teaches me more than any adult ever has. I pray that I am teaching him invaluable lessons along the way too.
Pray for Aiden.
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(hugs) Mama!
Know that others pray for you when you do not feel like praying. It is ok to be mad.
You son is a gem!
Stay strong!
Love & (((hugs)))
Jody
yes Christy…your friends will stand in the gap for you. I love you and your family dearly and you are always in my prayers. That boy is such a gift from God and although we are not sure why tthese things are happening we are sure that GOD has a plan! Please let me know if you need anything..
hugs and kisses
kelli
Such a sweet boy and such a strong mama.
If anyone catches a peek at Gods plan give us a hint.LOL
[...] This post was mentioned on Twitter by Renal Dialysis, IHateDialysis.Com and IHateDialysis.Com, Christy S Cross. Christy S Cross said: Lessons Learned http://bit.ly/aZmn4a -My son teaches me so much. He handles rare diagnoses/pain/dialysis w/grace that outshines most adults [...]
What an incredible gift in your life your son is. I’ll include him in my prayers!
Chris Lorenzen
Thanks Jody…you’re right…sometimes I cannot pray because I am angry. It’s good to know that I have friends who are standing in the gap. ((HUGS))
Thanks Melody
Chris–Thanks for the prayers. They truly keep us going!
What a sweet boy…what a blessing. I just posted on lessons our kids teach us, but this one is priceless.
Just found you, but I’m praying for you and your family.
Come see me sometime.
Praising Jesus with Aiden. For you and for him. What a treasure you both are. I’m praying with all my heart.
Oh, Christy….your baby….my heart just breaks for him but is so full for him at the same time…I am so glad that at least he has that big heart of his to rely on through these tough times. Much love to you and your family.
Thank you so much for coming by on my SITS day, I really appreciate it.
Laura–Thanks for finding Tales of the Toot and for the prayers:) I will definitely come see you!
Angelia-((hugs)) my sweet friend. Thanks so much.
Kelli–thanks for being there girl–it means a lot to us!
Your son is beautiful, to be hurting so badly but still be concerned for others before himself. You are lucky, and he is lucky to have a wonderful mother. I will pray for you and yours and I hope everything will work out in the end. Things happen for a reason, sometimes only to teach lessons.
Thanks Pua—I thank God for him daily! Thanks for visiting!!
Kisha—love your blog, lady! Glad to “meet” you! Thanks so much for your sweet comment and for stopping by!
Funny how quickly you look past what you yourself are teaching him!
You dismiss your own suffering everyday as you think and pray and write to help your baby. He learns to be concerned about others by watching the way you concern yourself with others (mainly him).
What an amazing little guy…with an equally amazing mama!